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An International Diabetes Perspective: Kyle Jacques Rose

By Amanda Sheldon

Managing Editor

Posted:  5/30/2013 3:27 PM

Tags:

Today, it’s my pleasure to introduce you to Kyle Jacques Rose, a true global ambassador for diabetes. Diagnosed with type 1 diabetes at the age of 16, Kyle has quite a story. His career has evolved from engineer to professional athlete/diabetes advocate to university faculty at INSEAD; he speaks four languages and has resided in as many continents. As the founder and managing director of Delta PM Diabetes, Kyle now travels the world supporting governments by helping shape policy to better fit the needs of people with diabetes. Enabling patient access to education via mobile health has become an important part of his efforts and he advises leading cell phone companies/app developers. Please join me in thanking Kyle for all of his work around the world.

Thank you for having invited me to say a few words. Last year, I visited over 20 different countries meeting with fellow patients with diabetes and speaking to key influencers in diabetes healthcare policy in the public and private sectors. Traveling as much as I do has allowed me to learn a great deal from my peers and helped me realize that we are perhaps not as different as I would have imagined.

Whether it’s Singapore, Abu Dhabi, Europe or the U.S., our needs are consistent. We want to lead healthy lives and minimize the added burden that diabetes brings to our daily routines. What is perhaps not so straight-forward are the environmental factors which impact our ability to do so. 

My work is based on the principle that people should have access to medicine no matter where they live. In the case of poor countries, this means working with organizations who can supply medicine to meet basic health needs. Recently, I visited Life For A Child’s partner Vivir Con Diabetes Center in Cochabamba, Bolivia where insulin and test strips are provided to children who would otherwise die without them. 

Elsewhere, it has meant working with healthcare payers (public and private) to provide access to treatments that would be otherwise cost-prohibitive to the diabetes community. The situation in the UK is a good example of a challenging environment. In my opinion, the National Health Service (NHS) is a very good overall healthcare system which has a lot to offer. However, patients have suffered in terms of access to devices such as insulin pumps and even blood glucose test strips sometimes due to limitations in funding. Local nonprofits such as INPUT and JDRF UK have helped me understand the seriousness of the problem. I will be addressing Members of Parliament in Westminster London next month and look forward to speaking on behalf of the many fellow diabetics I have met across the UK. 

I feel privileged to have had access to a diabetes therapy that has enabled me to lead a healthy life. Insulin pump therapy and continuous glucose monitoring have not only reduced my risk for developing health complications, but they also have significantly increased my quality of life. I am extremely grateful and intend to keep speaking up about it until we can all share these same health benefits, no matter which borders we happen to live between.
 
IMPORTANT SAFETY INFORMATION
- Medtronic Diabetes insulin infusion pumps, continuous glucose monitoring systems and associated components are limited to sale by or on the order of a physician and should only be used under the direction of a healthcare professional familiar with the risks associated with the use of these systems. 
- Successful operation of the insulin infusion pumps and/or continuous glucose monitoring systems requires adequate vision and hearing to recognize alerts and alarms. 

Medtronic Diabetes Insulin Infusion Pumps
- Insulin pump therapy is not recommended for individuals who are unable or unwilling to perform a minimum of four blood glucose tests per day. 
- Insulin pumps use rapid-acting insulin. If your insulin delivery is interrupted for any reason, you must be prepared to replace the missed insulin immediately. 

Medtronic Diabetes Continuous Glucose Monitoring (CGM) Systems
- The information provided by CGM systems is intended to supplement, not replace, blood glucose information obtained using a home glucose meter. A confirmatory fingerstick is required prior to treatment. 
- Insertion of a glucose sensor may cause bleeding or irritation at the insertion site. Consult a physician immediately if you experience significant pain or if you suspect that the site is infected. 

For more information, please visit www.medtronicdiabetes.com/importantsafetyinformation.


Comments

Melissa Holloway

Posted on Thu May 30 19:13:41 GMT 2013

Thank you for mentioning the situation in the UK, which does indeed lag behind many countries in Europe in terms of patients' access to pumps. According to recently published 2012 audit data, in the UK 6% of adult type 1s and 19% of children with type 1 have a pump. In my role as the Chief Adviser with INPUT, I would like to offer a clarification regarding the statement that access to both insulin pumps and test strips can be limited because of funding. While some individual physicians misapply criteria intended for type 2 in their test strip prescribing in the hopes of cutting costs, this has been warned against by the Department of Health (https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/156336/Safe-care-of-people-with-type-1-diabetes.pdf.pdf). In terms of pumps, the biggest resistor to uptake is not necessarily money - if a patient meets the clinical criteria for a pump, funding cannot be refused on grounds of cost. The bigger problem, in INPUT's experience, is the issue of clinical inertia and lack of awareness of pump therapy among both professionals and patients. An NHS task force is currently investigating the barriers to pump access because the UK's low uptake of pumps is not considered acceptable even within the UK. Please feel free to contact us on info@inputdiabetes.org.uk if we can provide any further support or information regarding access to diabetes technology in the UK. Thanks!

Adam

Posted on Thu May 30 20:11:00 GMT 2013

Super fascinating. It is interesting that virtually all nations, even rich ones with a track record of excellent heath care, struggle to provide access to diabetes treatments.

I wonder if there are patterns of access problems that arrise across countries or if each medical system has completely unique constraints that lead to completely unique issues to be solved.

The universality of needs Kyle mentioned is quite elegant. I hope that there are at least some global commonalities to solutions for diabetes medical access. That way different countries can share and learn from each other's efforts.

Sebastien E.

Posted on Thu May 30 20:50:56 GMT 2013

I am french and have seen Kyle Jacques with his diabetes work here. We are proud to have him represent France.

Yuying Lam Dorin

Posted on Fri May 31 01:16:56 GMT 2013

Hello Mr. Rose! You maybe remember my son Tony from Singapore? He was early diagnosis when you visited the hospital after your race in 2011. Now he's on a Medtronic insulin pump and doing sport. Thanks for all of your advices and your help for people with diabetes.

Scott K. Johnson

Posted on Fri May 31 04:36:07 GMT 2013

I too am a big supporter of Kyle. He leds perspective that not many can, and he is working hard for changes that will help all people with diabetes no matter where they live.

Alex Lambin

Posted on Sun Jun 02 15:11:12 GMT 2013

I met Kyle last summer. We got involved in the same hiking projet in the French Alpes.
When we are young, I think we all need an example to follow and I have no hesitation in saying Kyle is one. He has this ability to communicate very easily even when it comes to diabetes.

I totally support what he is working on right now, I mean trying to enable patient access to education via mobile health. As a member of the "High tech community", I truly think new technologies can imrpove our ways of treating diabetes.
Thanks Kyle for your help for people with diabetes.

Jen Block, FNP, RN, CDE

Posted on Sat Jun 22 18:55:25 GMT 2013

As a person living with type 1 who provides care for children and young adults with diabetes I think you, Kyle, for all of your INCREDIBLE work and contributions to diabetes. Through my work I have the chance to both witness the incredible advances in care and to understand the seemingly widening gaps in access and have an incredible respect and admiration for anyone helping to close these gaps.
THANK YOU!

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